I don’t want to write about the relapse. I’m tired of talking about it and I don’t remember a lot that happened. So friends and family back home…it sucked. I’ll write a little bit since I know people have questions, but then I am DONE for awhile. When I am home in a few weeks to see my family, I’ll talk about it then, but right now I need a break. It soaked up my life for 4 months and I just want to move on.
To put it in perspective for everyone, it was the worst relapse my Neuro had ever seen. Sadly, I can’t even say that it was the worst experience of my life. I’m on new meds. The Tysabri is pretty hard core and I have an infusion once a month. It is supposed to make my relapses fewer and farther between, so I won’t have any measurable results right away. It wasn’t supposed to alleviate symptoms for the current relapse. I took Acthar and steroids for that. The Acthar was much more helpful. For future relapses I will request that rather than Steroids. Additionally I am taking Welbutrin, because everyone thinks I should be depressed, and Vitamin D, because I live in a land that lacks sun.
I’m back home, to a place I moved into during this whole ordeal. I am still not unpacked as it’s overwhelming and I’d rather just snuggle with fat kitties. I started work today and am so happy to get back to a job that I really do love. I am only working part time right now, but am feeling stronger every day. I’m hopeful that my stamina will increase so that I may get back to business with all the ideas that rattled in my head while I sat around doing nothing for 4 months.
I’ve been told that I need to write about my MS experiences since I am “so freaking funny” and have a good attitude. Just not in the mood to write about it. I’ll just stick with blogging about my PNW discoveries.
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